COVID-19 Resources for children with special health needs and the families who care for them

Hope and fear cannot occupy the same space. Invite one to stay. –Maya Angelou

Waisman Center Resources and Updates

WI DHS Higher Risk/Families with CYSHCN Resources

Mental Wellness Newsletter including an Anxiety Grounding Technique from WI Office of Children’s Mental Health (5.27.20)

COVID-19 Information for Children’s Health Advocates from National Institute for Children’s Health Quality (updated 5.24.20)

Southern Regional Center for CYSHCN Conversations on Showing Up for Kids!

NEXT up June 3–Special Education and IEPs–who can help? Register at https://go.wisc.edu/lrv9y2

  • Rural Wisconsin: The Good, the Bad and the Ugly (Live May 27, 2020). Recording available on YouTube
  • Anxiety: Ideas to help our kids be calm(er) and (more) focused (Live May 20, 2020). Recording available on YouTube
  • What we can learn from a virtual school (Live May 13, 2020). Recording available on YouTube
  • Learning from home and Neurodiversity (Live May 6. 2020). Recording available on YouTube

Intelligent Lives Then and Now (film by Dan Habib): online reunion and screening June 10 noon-2. Space is limited. Registration required.

“Riding the Waves of COVID-19: An Information Series for Families of Children and Youth with Special Health Care Needs or Disabilities”
Brief webinars on May 26, 27 and 28 (12:00-12:45pm). To connect: https://uwmadison.webex.com/uwmadison/j.php?MTID=mb671e3809ac3d679c630d8af83ee20be
Password: Families (32645437) PPCFV Training Flyer

The Science of Happiness for KIDS! Optimism, resilience, growth mindsets, courage, confidence, and well-being are skills that kids can learn at any age.

A few resources for families with younger children

Governor Tony Evers has proclaimed May as Resilient Wisconsin Month.

A few nuggets from the news

A few mental health resources

Spanish Language friends/coworkers? Send them to Consejo Latino Para la Salud for videos, testing information and more about COVID-19 from the Latino Health Council.

A few resources for families with younger children

UW Department of Psychiatry has put together some awesome mental health resources

COVID-19 Diversity, Equity and Inclusion Resources

Supporting younger children from the Early Childhood Technical Assistance Center.

Family Engagement May Newsletter from WI FACETS (Resilience and Mental Health)

A couple of resources for Teens

FREE weekly video social skills with Social Detective.

Staying Resilient During COVID-19 Compassion Resilience Toolkit from Wise and Rogers InHealth

6 Online Therapy Tips for Preschoolers With Disabilities During COVID-19 from The Mighty

Being Prepared: What Families Can Do Now Family Voices of Wisconsin Spring Newsletter

Resources for Families to Support Learning from Home During COVID-19

Handout on Anxiety and Autism–helpful tips from Martha Walter who presented at the CoP ASD/DD in March. (I think some of us might be experiencing some anxiety recently).  Presentations from the CoP ASD/DD Anxiety and Autism gathering are available.

A LOT of resources to help support students with ASD learning from home.
https://sites.google.com/view/studentswithasdathome/home

Well-Being Toolkit and Resources from Center for Healthy Minds (UW Madison)

All in for Kids newsletter about services and supports provided through WI Children’s Long Term Support Waiver

Finding You NEW NORMAL during COVID-19 is a very comprehensive resource/course from Respite Care Association of Wisconsin.

GiGi’s Playhouse, Down Syndrome Achievement Centers, offers GiGi’s at Home with free therapeutic and educational programming. https://gigisplayhouse.org/gigisathome/

PBS Wisconsin and Milwaukee PBS, in partnership with the Wisconsin Department of Public Instruction (DPI), announce an ambitious new tv broadcast schedule to support At-Home Learning, accompanied by curriculum-aligned digital resources.
https://pbswisconsin.org/at-home-learning/

In this challenging time, we all need to reach out to connect with others in a safe space.” Check out this opportunity through You Are Not Alone by the Wisconsin Alliance for Infant Mental Health.

Basic Resources on COVID-19 to Use and Share by The ARC Wisconsin

Supporting Individuals with Autism through Uncertain Times by AFIRM (Autism Focused Intervention Resources and Modules)

ABC for Health (Health insurance/benefits) information during COVID-19

COVID-19 Information By and For People with Disabilities–put together by self-advocates in Vermont.

COVID-19 Response and Resources from Autism Society

COVID-19 page which includes Educational Resources for teaching at home from the National Down Syndrome Society.

A Spanish language edition, “GUÍA DE RECURSOS,” can be found here.

Here is a place of connections and relationships. We truly believe we are better together. We hope this web site will serve as a portal to introduce you to a number of exciting opportunities available in Wisconsin. Here you can connect to a large number of resources concerning autism spectrum disorder and other developmental disabilities. Here you will find training on screening, assessment, diagnosing, communicating results, starting a medical home and more, much more. Here you can join with over 150 other people representing over 50 organizations at a state-wide Community of Practice.

Together we can make a difference. We invite you to look through this portal and see what we are working on and we invite you to join us. If you have any questions or suggestions, please contact Tim Markle at markle@waisman.wisc.edu