School Reopening Information, Guidance and Resources–now on our School/Special Education Page
COVID-19 (AND MORE) Resources for children with special health needs and the families who care for them
Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown
Posted the Week of September 21, 2020
Supporting Resiliency in Times of Uncertainty Community of Practice on Autism Spectrum Disorder and other Developmental Disabilities in partnership with CESA #1 and DPI Special Education Supports will be ONLINE October 28 from 9:00am-12:30pm. We will be learning together on Supporting Resilience During Uncertain Times: Helping Children Cope through Attuned Relationships with Mona Delahooke, Ph.D. and Working Collaboratively with Parents and Families with Emily W. King, Ph.D., PLLC This is free event for families, educators, health care professionals, county and state workers and more. You must register at https://bit.ly/32VsxgE! Flyer has more details.
LA FAMILIA, EL INTERNET, Y NUESTROS JÓVENES EN TIEMPOS DE PANDEMIA: A Spanish Speaking Zoom Workshop Martes 29 de SEPTIEMBRE 6:00-7:30pm from Formando Lazos Familiares download the flyer for connection information.
Wisconsin Self-Determination Conference October 26-28 from the Wisconsin Board for People with Developmental Disabilities
TRAININGS co-sponsored by SRC:
1) What’s After High School? A Transition Training for Families, Youths and Providers. Tuesday, September 29, 3:00-4:30pm. Presented by Family Voices of Wisconsin, cosponsored by the Transition Improvement Grant. If you have a youth or work with a youth with special needs/disabilities who is 14-21, this training is for you! (Youth are welcome to attend as well). Register at go.wisc.edu/jdc58k. You will need to watch a 30 minute video at familyvoiceswi.org/learn/whats-after-high-school/ BEFORE the training. (Flyer has more details).
2) Support Parent Training. Saturday, October 3, 10:00am-12:00pm. Presented by Parent to Parent of Wisconsin. Join our statewide network of families who support each other on the journey of parenting children with special health care needs by attending the training and becoming a support parent. For an optimal experience, we need a number of parents to sign up! Register at https://www.surveymonkey.com/r/SP10320. (Flyer has more details)
3) Medicaid Made Easy. Tuesday, October 6, 3:00pm-4:30pm. Presented by Family Voices of Wisconsin, cosponsored by RISE Wisconsin. Flyer has more details. Would you like to cosponsor and help promote? Let Tim know at email@example.com.
4) Did You Know? Now You Know! Tuesday, October 20, 3:00-4:30pm. Presented by Family Voices of Wisconsin, cosponsored by Gio’s Garden. Flyer has more details. Would you like to cosponsor and help promote? Let Tim know at firstname.lastname@example.org.
Conversations on Showing Up for Kids!
Conversations on Showing Up for Kids! Thursday, 10/1 12:00-12:45 Guests from the WI Public Service Commission will joining us to talk about Getting Connected to Affordable Telecommunications with Lifeline and TEPP. Flyer has more details. Register at https://go.wisc.edu/786y37
Conversations on Showing Up for Kids! Thursday, 10/8 1:00-1:45 We will be discussing the Role of the School Nurse. Details coming soon.
Conversations on Showing Up for Kids! Thursday, 10/15 12:00-12:45 We will be discussing the Importance of Parent Support. Details coming soon.
LATEST Conversations on Showing Up for Kids! Thursday, 9/24 Caroline Rossing from the Wisconsin Statewide Parent Educator Initiative (WSPEI) joined us and talked about how WSPEI helps support families of student with special needs with phone support, regional support, and district support. Recording is available on YouTube.
RECENT Conversations on Showing up for Kids! Thursday, 9/17 Liz Hecht from Family Voices of Wisconsin and the Survival Coalition of Wisconsin Disability Organizations joined us to discuss what they learned from their “Impact of School Closures on Families and Students with Disabilities” Focus Groups. Recording available on YouTube.
Autism Society of South Central Wisconsin Events https://autismsouthcentral.org/events/
Safety and the “Snail” Mail September 29, 6:00-7:00pm (Part of the Fall Safety Series)
Autism 101 October 21, 12:00-1:00pm AND 6:30-7:30pm
INTEGRAL Adult Autism Conference October 24
WI FACETS presents Serving on Groups that Make Decisions: A Guide for Families
Are you a parent who wants to become more involved in making decisions within your school district? Are you a school district who wants to engage more families in your decision making processes? Are you interested in being more effective on a committee, team or council? Consider registering for any or all of the following trainings:
Serving on Groups Webinars based on training materials found here: https://servingongroups.org/
- 2020.9.24 – Opportunities to Get Involved & Types of Groups (Sections 1&2) Archived Webinar available at https://servingongroups.org/learning-center
- 2020.10.1 – Processes Groups Use (Section 3) https://register.gotowebinar.com/register/1214447281752391939
- 2020.10.15 – Tools & Tips (Sections 4&5) https://register.gotowebinar.com/register/7687086417004944387
- 2020.10.22 – Understanding & Using Data (Section 6) https://register.gotowebinar.com/register/5242961128901084419
- 2020.10.29 – The Role of Families and Skills for Serving in Groups (Section 7&8) https://register.gotowebinar.com/register/71194882400959235
Family Input Sessions for the CLTS Waiver Renewal October 7, 8 and 9 from WI DHS
Busting Mask Myths One Question at a Time from UW Health
Sickle Cell Disease (SCD) and Transitioning to Adulthood from National Institute for Children’s Health Quality
Successful Strategies for Improving Infant Health Outcomes from National Institute for Children’s Health Quality
NEW BLOGS on mental health and recovery from Rogers Behavioral Health (Struggling with Mental Health, Suicide, Detox, Treatment and more)
September Update from Well Badger Resource Center
Finding His Voice from JAMA network (Excellent article on advocacy and transition)
All in for Kids The September issue provides important Children’s Long-Term Support (CLTS) Waiver Program updates, including: Information about the new online provider directory; An opportunity to give input on the CLTS Waiver Program; and The new Feelings Thermometer. Available in Hmong, Spanish and English.
Posted the Week of September 15, 2020
Experiencing Grief during COVID-19 from Child Neurology Foundation
For Kids with Special Needs, Online Schooling Divides the Have and Have-Nots from Kaiser Health News
Education Forward: Reopening Wisconsin Schools from Wisconsin Department of Public Instruction
Ready4K is an evidence-based family engagement curriculum delivered via text messages. Each week, you’ll receive short text messages with fun facts and easy tips on how to promote your child’s development by building on existing family routines. Sign up today at Ready4K! from the WI Department of Children and Families
COVID-19 Special Education Information (PowerPoint slides) from Wisconsin Department of Public Instruction
Arts Education School Operating Considerations from Wisconsin Department of Public Instruction
Upcoming Webinars/On-line Conferences
- Conversations on Showing Up for Kids! Thursday, 9/24, 12-12:45. We will be talking about how the Wisconsin Statewide Parent Educator Initiative (WSPEI) helps support families of student with special needs. We will be joined by Caroline Rossing, WSPEI Statewide Grant Coordinator. Register at https://go.wisc.edu/786y37 (Flyer has more details.)
- LA FAMILIA, EL INTERNET, Y NUESTROS JÓVENES EN TIEMPOS DE PANDEMIA: A Spanish Speaking Zoom Workshop Martes 29 de SEPTIEMBRE 6:00-7:30pm from Formando Lazos Familiares download the flyer for connection information.
- Virtual Fall Fetal Alcohol Spectrum Disorder Forum October 30 from Orchids (registration available in September).
Participate in Research/Surveys
- ASSIST–Parents of youth with an autism spectrum disorder age 16-26 are invited to participate in a new research program looking to improve parents’ ability to advocate. Contact the Waisman Center at email@example.com 0r (608) 265-3165. More info on the flyer- ASSIST
Posted the Week of August 31, 2020
Considerations for Young Children and Those With Special Needs as COVID-19 Continues from JAMA Pediatrics
Back to School: How can schools safely social distance; particularly for students with special services and full-time aides? from Child Neurology Foundation
Ensuring Children’s Access to Care Using Telehealth in Medicaid During COVID-19 from Manatt on Health: Medicaid Edition
NEW Videos on Wearing a Cloth Face Mask, Washing your Hands and Staying Home When you are Sick in SPANISH and ENGLISH from the National Association of School Nurses
What can families do if they disagree with their IEP Team? What are the options? Tim Markle, Director of the Southern Regional Center for CYSHCN talked with guests from Gia Pionek from the Wisconsin Special Education Mediation System and Matthew Zellmer from WI FACETS about what parents and schools can do when they disagree. Recording is AVAILABLE.
We all need a Self-Care Calendar! Check this out from Action for Happiness
Shout out to Highland Community Schools in Iowa County from NBC15
Amendment to Order #9 Released-Tuesday, September 1, 2020
The amendment allows for in-person instruction to students with a disability and/or individualized education program.
Free Transition Training for Families of Youth with IEP’s: Transition Parents in Partnership trainings will take place virtually via Zoom beginning this fall. Now is a great time to take advantage of top-notch training without the stress of traveling or being away from home! Transition Parents in Partnership (TPIP) will prepare families for the transition process for their youth with disabilities ages 14-21 in the areas of employment, education, living and health. See click HERE to view the flyer for training options and registration.
What can we do to help“back-to-school” anxiety? a Conversation on Showing Up for Kids! August 27th 12:00-12:45pm Tim Markle, Director of the Southern Regional Center for CYSHCN talked with Connie Persike, Speech Language Pathologist and Behavioral Consultant from CP Consulting and Tim Peerenboom, School Psychology Consultant for WI DPI. They discussed ideas on helping our kids (and ourselves) deal with the anxiety of returning to school. Recording NOW AVAILABLE
Returning to School During and After Crisis Practice Guides from Center on Positive Behavioral Interventions and Supports (PBIS)
August 2020 OSEP Update Responding to COVID-19: Back to School, Policy Letters from Office of Special Education Programs (OSEP) (8.27.20)
REVISED August 2020: A Transition Guide to Postsecondary Education and Employment for Students and Youth with Disabilities from the Office of Special Education and Rehabilitative Services (OSERS)
Parents: Supporting Learning During the COVID-19 Pandemic Online Modules from Vanderbilt University
Posted the Week of August 24, 2020
Anxiety in Schools Podcast Series from Rogers Behavioral Health
Supporting students with school anxiety during COVID-19 Blog Post by Rogers Behavioral Health
Rethinking Unemployment and Sex Education Autism Knows No Boundaries podcast with Michael John Carley
Questions and Answers on Helping Kids Return to School. A recorded Facebook Live Event from Rogers Behavioral Health.
September Family Engagement Newsletter from WI FACETS featuring information on Assistive Technology and Virtual Learning along with ABLE accounts and trusts
Coronavirus Video Series has short 2-7 minute video on how public health benefits are impacted by COVID-19 from HealthWatch Wisconsin
COVID-19 Help (including a Resource Guide for Families) from Wisconsin Well Badger Resource Center
Strategies for Protecting K-12 School Staff from COVID-19 (updated 8.20.20) From the CDC
Back to School Planning: Checklists to Guide Parents, Guardians, and Caregivers Includes: Preparing for At-Home Learning and and Preparing for In-Person Classes from the CDC
- Wisconsin Department of Children and Family Services (DCF) and WI DPI Guidance for Child Care
COVID-19 Letter to District Administrators
New DHS Guidance, DCF Resources, and Digital Equity (8/19/20) Includes: DHS Guidance on COVID-19 Outbreaks in School, DCF guidance documents to help child care providers and local educational agencies as families, schools, and child care providers navigate the reopening of school this fall, (this information can also be found on the DCF website: https://dcf.wisconsin.gov/covid-19/childcare/families) and Support for digital equity
4K Outreach-COVID-19: Guidance and Considerations (8/17/20) Includes: This document provides information for school districts offering 4K Outreach during 2020-2021 school year. It provides guiding questions and examples of outreach efforts that are acceptable during this time of COVID-19. These are offered to support districts in developing outreach activities that best meet the unique needs of their individual districts and communities.
EARLY LEARNING INFORMATION-COVID-19 (8/24/20) Includes: Link to the running updates for Early Learning information for DPI. The above information is included in this document.
Posted the Week of August 17, 2020
Parents and Professionals in Wisconsin talk about Virtual Schooling and Home Schooling (recording) with the Autism Society of South Central Wisconsin
AUGUST 2020:THE ANNUAL HEALTHCARE ISSUE from Exceptional Parenting
What The Coronavirus Means For IEPs This Year from DisabilityScoop
Supports for Students with Neurodiverse, and Social and Emotional Needs During Covid-19 Resource list (8/20/20) from WI DPI
Q&A: Mental health expert talks emotional well-being, building resiliency for the 2020-21 school year from Community Impact Newsletter
Guidelines for the Prevention, Investigation, and Control of COVID-19 Outbreaks in K-12 Schools in Wisconsin (8/19/20) from WI Department of Health Services
COVID-19 Decision Tool for Individuals and Families (8/19/20) from WI Department of Health Services
Education Forward: Operating Schools During a Pandemic (8/19/20) from Wisconsin Department of Public Instruction
Down Syndrome Clinic to You (DSC2U) brings the best of health and wellness information about Down syndrome to caregivers and primary care physicians around the globe
South Madison Community COVID Testing Site at the Park Street Public Health WIC clinic is open Mondays, Wednesdays and Fridays. You need to make an appointment.
Equity and Diversity
- Equity Resources from Wisconsin Alliance for Infant Mental Health
- Teach, Learn, & Connect (TLC) for Kids Resource library includes popular, on-demand training and shareable fact sheets to help low income individuals and families – especially those with children and youth with special healthcare needs in the home – secure telecommunications services. From ABC for Health.
- For Mothers of Black Children with Disabilities, Living with Twice the Fear from Forbes
- Talking with Young Kids about Racism, Police Brutality, and Protests FVJuneeBlast2020 from Family Voices (.pdf)
- COVID-19 Diversity, Equity and Inclusion Resources
Summer 2020 Resources
- Virtual Summer Camps from Summer Camp Hub
- To Parents, From a Family in ‘COVID-19 Mode’ for 10 Years from The Mighty
- 2020 Juventuras Clubes Virtuales/Juventuras Virtual Clubs from Centro Hispano of Dane County
- Family Engagement Newsletter from WI FACETS–focus on Speech and Language Development and some cool resources for summer!
- Resource List to Stay Saner at Home this Summer from Family Voices of Wisconsin
- 100 Things to do this summer from the Milwaukee Journal Sentinel (you may need to answer some questions to access the full article)
- 6 fun ideas for summer fun now that camp has been cancelled from CNN
- Wisconsin Virtual Field Trips from National Resources Foundation of Wisconsin
- Reimagining Summer: Planning for the New Normal Summer 2020 Family Voices Newsletter
- Madison Summer Options
- Sauk Co. Health Dept. warns about COVID-19 exposure at Reedsburg district-wide registration event from NBC15
- At-home Learning Resources for the COVID-19 Outbreak from FamilyEducation
- School’s Out: A Parents’ Guide for Meeting the Challenge During the COVID-19 Pandemic from NYU Langone Health
- Preparing to Learn from Home from Victoria State Government (Australia)
- ‘This is hell’: Parents and kids hate online learning, but they could face more of it from USA Today
- “When Should My Child Go Back to School?” is the topic discussed by a school nurse and a child neurologist in an educational series sponsored by the Child Neurology Foundation and the American Academy of Pediatrics
- Teaching Children with Special Needs at Home Recorded Webinar Series The staff of the Autism Society SE WI and guests from Gemiini Systems, a Special Ed eLearning company, have provided a series of free webinars as we partner to make it through these challenging times. Past webinars are available on their playlist on YouTube. Topics: Sheltering in Place to Stay Safe, Building Language Through Play, Keeping Busy, OK. . . Are We Really Doing This?, Working on Life Skills, Quick Behavior Tips and more
- A COVID-19 Preparedness Tool for Families and Caregivers developed by the Stanford Health Literacy Lab
- Coronavirus: Caring for Kids with Special Health Needs article and recording from KidsHealth at the Nemours Foundation
- Ensuring Support Services for Youth with Disabilities and Special Health Care Needs Amid COVID-19 – A Zoom conversation from PolicyLab at Children’s Hospital of Philadelphia, featuring parents, educators, and physicians.
- Coping with Crayons: Kid-Friendly COVID-19 Information– To help children understand the disruption in their lives, Children’s Hospital of Richmond at Virginia Commonwealth University created a coloring book to provide COVID-19 information that children of all ages can easily digest and understand. An article from the Children’s Hospital Association notes that the activity book, available online and in print, also can help parents gauge their children’s feelings about the pandemic.
- CDC Toolkit for Young Adults (15-21) includes printable fact sheets
- Voluntary National Guidelines for Providing and Receiving Respite Safely During the COVID-19 Pandemic from ARCH National Respite Network and Resource Center
- Madison Neighborhood COVID-19 Testing
- The Impact of Lost Therapy Services During COVID-19 and What Parents Can Do in the Interim (Video) from Child Neurology Foundation
- Cloth Face Coverings in School: What Families Need to Know from WI DHS
- Staying Resilient Through the Challenges of Autism During COVID-19 from The Mighty
- COVID-19 Diversity, Equity and Inclusion Resources
- To Parents, From a Family in ‘COVID-19 Mode’ for 10 Years from The Mighty
- Guidance on re-opening during COVID-19 pandemic in ways that protect people with disabilities and older adults from the Wisconsin Survival Coalition
- COVID-19 Special Issue from Exceptional Parent
- How the COVID-19 Pandemic Impacts Kids with Special Healthcare Needs. On a podcast from RadioMD, which features experts from the American Academy of Pediatrics, a pediatrician who focuses on CSHCN discusses ideas for how families can cope with the pandemic, especially when the supports provided by schools are unavailable. Listen to the podcast
- Managing Home Healthcare and Access to Medical Supplies During COVID-19. A video from the Child Neurology Foundation features the father of a young adult who requires 24-hour care interviewing a home health provider about how care is changing. See the video
- COVID-19 Information for Children’s Health Advocates from National Institute for Children’s Health Quality (updated 5.24.20)
- Spanish Language friends/coworkers? Send them to Consejo Latino Para la Salud for videos, testing information and more about COVID-19 from the Latino Health Council
- Being Prepared: What Families Can Do Now Family Voices of Wisconsin Spring Newsletter
- Resources on COVID-19 to Use and Share from The ARC Wisconsin
- Supporting Individuals with Autism through Uncertain Times from AFIRM (Autism Focused Intervention Resources and Modules)
- ABC for Health (Health insurance/benefits) information during COVID-19
- COVID-19 Information By and For People with Disabilities–put together by self-advocates in Vermont
- COVID-19 Response and Resources from Autism Society
30th Anniversary of the ADA
- Celebrate the 30th Anniversary of the ADA with this Collection of Resources from The Pacer’s National Parent Center on Transition and Employment
Resources for Families with Younger Children
- COVID-19 Child Care Resources from WI Department of Children and Families
- COVID Resources for Families from Wisconsin Alliance for Infant Mental Health
- Updates and Resources for Wisconsin Child Care Providers, Children and Families from Wisconsin Early Childhood Association
- Resources from Wisconsin Alliance for Infant Mental Health
- Office of Early Learning from WI Department of Public Instruction
- Child Care Resources from WI Department of Children and Families
- Child Care Resources for Families and Providers from WI Department of Children and Families
- Tips for Families from Zero to Three
- Supporting younger children from the Early Childhood Technical Assistance Center
- 6 Online Therapy Tips for Preschoolers With Disabilities During COVID-19 from The Mighty
- Tips for Supporting Infants and Young Children’s Transition as we Re-Open from Wisconsin Alliance for Infant Mental Health
Nuggets from the News
- COVID questions: Economic recovery, wedding attendance from UW-Madison News
- Wisconsin’s tribes have weathered COVID-19 better than tribes in other states. How did they do it? from the Madison.com
- Caring for an Adult with Disabilities in Retirement from PBS Newshour (with a Wisconsin family)
- Which Kids Get Sickest from COVID-19? The medically complex from NBC News
- The challenge of distance learning for parents of children with special needs from PBS Newshour
- In-home nurses caring for youth with special needs during COVID-19 from KSTP.com
- Mom Equips Ambulances with Sensory Kits from Disability Scoop
Mental Health Resources
- August Newsletter featuring the Feelings Thermometer, Exploring Racial Equity and more from the WI Office of Children’s Mental Health
- Those with contamination OCD face extra challenges during Pandemic from Rogers Behavioral Health
- Finding hope and healing for children suffering from trauma from Rogers Behavioral Health
- Resilient Wisconsin: Trauma-Informed News and Notes, July 2020 includes information on cyberbullying
- COVID-19 Guide to Supports for People Living with Mental Health and Substance Abuse Concerns from Resilient Wisconsin
- Mental Wellness Newsletter from WI Office of Children’s Mental Health (4.13.20)
- Blogs and Webinars from Rogers Behavioral Health
- UW Department of Psychiatry has put together some awesome mental health resources
- Staying Resilient During COVID-19 Compassion Resilience Toolkit from Wise and Rogers InHealth
- Well-Being Toolkit and Resources from Center for Healthy Minds (UW Madison)
- Handout on Anxiety and Autism–helpful tips from Martha Walter who presented at the CoP ASD/DD in March. (I think some of us might be experiencing some anxiety recently). Presentations from the CoP ASD/DD Anxiety and Autism gathering are available
- Mental Wellness Newsletter including an Anxiety Grounding Technique from WI Office of Children’s Mental Health (5.27.20)
- The Science of Happiness for KIDS! Optimism, resilience, growth mindsets, courage, confidence, and well-being are skills that kids can learn at any age
- Resilient Wisconsin: Trauma-informed News and Notes, June 2020 from Wisconsin Department of Health Services
Resources for Teens/Preparing for Transition to Adulthood
- Family Voices has resources for every stage of your child’s life. This includes your teen’s move from children’s services to adult long-term support programs like IRIS. Our new fact sheet, Working with an IRIS Consultant, is a guide on what to expect from your IRIS Consultant (IC) and how to partner with your IC to decide the best way to use your IRIS budget to get goods and services you need. You can find our new IRIS fact sheet at familyvoiceswi.org/resource-library/working-with-an-iris-consultant
- Inspiring Possibilities Newsletter including articles on Virtual IEP Meetings, Distance Learning and Challenging Behaviors and Keeping Students Motivated from Home from PACER’s National Parent Center on Transition and Employment
- Addressing the Mental Health of “Quaranteens“ from Family Voices
- 6 Tips for Teens from WI Office of Children’s Mental Health (4.29.20 newsletter)
- Supporting Teenagers and Young Adults from Child Mind Institute
- National Parent Center on Transition and Employment
Children and Youth with Special Health Care Needs/Maternal and Child Health
- For Those Born With Rare Diseases, Early Diagnosis Can Save Lives from National Institute for Children’s Health Quality (NICHQ)
- Making Fathers Visible in Maternal and Child Health from National Institute for Children’s Health Quality (NICHQ)
- Innovative Strategies for Promoting Developmental Health in Rural Alaska from National Institute for Children’s Health Quality (NICHQ)
- Considering a Complementary Health Approach? information from the National Institutes of Health
- Families of Children with Special Needs are Suing in Several States. Here’s Why. from NPR
- We’re Missing Kids with ASD: Strategies to Improve Screenings from Medscape
Southern Regional Center for CYSHCN Conversations on Showing Up for Kids!
- Camp Cancelled? Ideas for Summer 2020 PART TWO!(Live June 17, 2020) Recording available on YouTube
- Camp Cancelled? Ideas for Summer 2020 (Live June 10, 2020) Recording available on YouTube
- Special Education and IEPs (Live June 3, 2020) Recording available on YouTube
- Rural Wisconsin: The Good, the Bad and the Ugly (Live May 27, 2020). Recording available on YouTube
- Anxiety: Ideas to help our kids be calm(er) and (more) focused (Live May 20, 2020). Recording available on YouTube
- What we can learn from a virtual school (Live May 13, 2020). Recording available on YouTube
- Learning from home and Neurodiversity (Live May 6. 2020). Recording available on YouTube
A Spanish language edition, “GUÍA DE RECURSOS,” can be found here.
Here is a place of connections and relationships. We truly believe we are better together. We hope this web site will serve as a portal to introduce you to a number of exciting opportunities available in Wisconsin. Here you can connect to a large number of resources concerning autism spectrum disorder and other developmental disabilities. Here you will find training on screening, assessment, diagnosing, communicating results, starting a medical home and more, much more. Here you can join with over 150 other people representing over 50 organizations at a state-wide Community of Practice.
Together we can make a difference. We invite you to look through this portal and see what we are working on and we invite you to join us. If you have any questions or suggestions, please contact Tim Markle at firstname.lastname@example.org
- Grant Information for the Connections Grant (2008-2011)
- Videos Vignette