School Reopening Information, Guidance and Resources–now on our School/Special Education Page
COVID-19 (AND MORE) Resources for children with special health needs and the families who care for them

Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown

Waisman Center Resources and Updates

WI DHS Higher Risk/Families with CYSHCN Resources

Posted the Week of September 21, 2020

Supporting Resiliency in Times of Uncertainty  Community of Practice on Autism Spectrum Disorder and other Developmental Disabilities in partnership with CESA #1 and DPI Special Education Supports will be ONLINE October 28 from 9:00am-12:30pm. We will be learning together on Supporting Resilience During Uncertain Times: Helping Children Cope through Attuned Relationships with Mona Delahooke, Ph.D. and Working Collaboratively with Parents and Families with Emily W. King, Ph.D., PLLC This is free event for families, educators, health care professionals, county and state workers and more. You must register at https://bit.ly/32VsxgE! Flyer has more details.

LA FAMILIA, EL INTERNET, Y NUESTROS JÓVENES EN TIEMPOS DE PANDEMIA:  A Spanish Speaking Zoom Workshop Martes 29 de SEPTIEMBRE 6:00-7:30pm from Formando Lazos Familiares download the flyer for connection information.

Wisconsin Self-Determination Conference October 26-28 from the Wisconsin Board for People with Developmental Disabilities

TRAININGS co-sponsored by SRC:

1) What’s After High School? A Transition Training for Families, Youths and Providers. Tuesday, September 29, 3:00-4:30pm. Presented by Family Voices of Wisconsin, cosponsored by the Transition Improvement Grant. If you have a youth or work with a youth with special needs/disabilities who is 14-21, this training is for you! (Youth are welcome to attend as well). Register at go.wisc.edu/jdc58k​. You will need to watch a 30 minute video at familyvoiceswi.org/learn/whats-after-high-school/ BEFORE the training. (Flyer has more details).

2) Support Parent TrainingSaturday, October 3, 10:00am-12:00pm. Presented by Parent to Parent of Wisconsin. Join our statewide network of families who support each other on the journey of parenting children with special health care needs by attending the training and becoming a support parent. For an optimal experience, we need a number of parents to sign up! Register at https://www.surveymonkey.com/r/SP10320. (Flyer has more details)

3) Medicaid Made Easy. Tuesday, October 6, 3:00pm-4:30pm. Presented by Family Voices of Wisconsin, cosponsored by RISE Wisconsin. Flyer has more details. Would you like to cosponsor and help promote? Let Tim know at tmarkle@wisc.edu.

4) Did You Know? Now You Know! Tuesday, October 20, 3:00-4:30pm. Presented by Family Voices of Wisconsin, cosponsored by Gio’s Garden. Flyer has more details. Would you like to cosponsor and help promote? Let Tim know at tmarkle@wisc.edu.

Conversations on Showing Up for Kids!

Conversations on Showing Up for Kids! Thursday, 10/1  12:00-12:45 Guests from the WI Public Service Commission will joining us to talk about Getting Connected to Affordable Telecommunications with Lifeline and TEPP. Flyer has more details. Register at https://go.wisc.edu/786y37

Conversations on Showing Up for Kids! Thursday, 10/8  1:00-1:45 We will be discussing the Role of the School Nurse. Details coming soon.

Conversations on Showing Up for Kids! Thursday, 10/15  12:00-12:45 We will be discussing the Importance of Parent Support. Details coming soon.

LATEST Conversations on Showing Up for Kids! Thursday, 9/24 Caroline Rossing from the Wisconsin Statewide Parent Educator Initiative (WSPEI) joined us and talked about how WSPEI helps support families of student with special needs with phone support, regional support, and district support. Recording is available on YouTube.

RECENT Conversations on Showing up for Kids! Thursday, 9/17 Liz Hecht from Family Voices of Wisconsin and the Survival Coalition of Wisconsin Disability Organizations joined us to discuss what they learned from their “Impact of School Closures on Families and Students with Disabilities” Focus Groups. Recording available on YouTube.

Autism Society of South Central Wisconsin Events https://autismsouthcentral.org/events/

Safety and the “Snail” Mail September 29, 6:00-7:00pm (Part of the Fall Safety Series)
Autism 101 October 21, 12:00-1:00pm AND 6:30-7:30pm
INTEGRAL Adult Autism Conference October 24

WI FACETS presents Serving on Groups that Make Decisions: A Guide for Families

Are you a parent who wants to become more involved in making decisions within your school district?  Are you a school district who wants to engage more families in your decision making processes?  Are you interested in being more effective on a committee, team or council?  Consider registering for any or all of the following trainings:

Serving on Groups Webinars based on training materials found here: https://servingongroups.org/

Family Input Sessions for the CLTS Waiver Renewal October 7, 8 and 9 from WI DHS

Busting Mask Myths One Question at a Time from UW Health

Sickle Cell Disease (SCD) and Transitioning to Adulthood from National Institute for Children’s Health Quality

Successful Strategies for Improving Infant Health Outcomes from National Institute for Children’s Health Quality

NEW BLOGS on mental health and recovery from Rogers Behavioral Health (Struggling with Mental Health, Suicide, Detox, Treatment and more)

September Update from Well Badger Resource Center

Finding His Voice from JAMA network (Excellent article on advocacy and transition)

All in for Kids The September issue provides important Children’s Long-Term Support (CLTS) Waiver Program updates, including: Information about the new online provider directory; An opportunity to give input on the CLTS Waiver Program; and The new Feelings Thermometer. Available in Hmong, Spanish and English.

Posted the Week of September 15, 2020

Experiencing Grief during COVID-19 from Child Neurology Foundation

For Kids with Special Needs, Online Schooling Divides the Have and Have-Nots from Kaiser Health News

Education Forward: Reopening Wisconsin Schools from Wisconsin Department of Public Instruction

Ready4K is an evidence-based family engagement curriculum delivered via text messages. Each week, you’ll receive short text messages with fun facts and easy tips on how to promote your child’s development by building on existing family routines. Sign up today at Ready4K! from the WI Department of Children and Families

COVID-19 Special Education Information (PowerPoint slides) from Wisconsin Department of Public Instruction

Arts Education School Operating Considerations from Wisconsin Department of Public Instruction

Upcoming Webinars/On-line Conferences

  •  Conversations on Showing Up for Kids! Thursday, 9/24, 12-12:45. We will be talking about how the Wisconsin Statewide Parent Educator Initiative (WSPEI) helps support families of student with special needs. We will be joined by Caroline Rossing, WSPEI Statewide Grant Coordinator. Register at https://go.wisc.edu/786y37 (Flyer has more details.)
  • LA FAMILIA, EL INTERNET, Y NUESTROS JÓVENES EN TIEMPOS DE PANDEMIA:  A Spanish Speaking Zoom Workshop Martes 29 de SEPTIEMBRE 6:00-7:30pm from Formando Lazos Familiares download the flyer for connection information.
  • Virtual Fall Fetal Alcohol Spectrum Disorder Forum October 30 from Orchids (registration available in September).

Participate in Research/Surveys

  • ASSIST–Parents of youth with an autism spectrum disorder age 16-26 are invited to participate in a new research program looking to improve parents’ ability to advocate. Contact the Waisman Center at transition@waisman.wisc.edu 0r (608) 265-3165. More info on the flyer- ASSIST

Posted the Week of August 31, 2020

Considerations for Young Children and Those With Special Needs as COVID-19 Continues from JAMA Pediatrics

Back to School: How can schools safely social distance; particularly for students with special services and full-time aides? from Child Neurology Foundation

Ensuring Children’s Access to Care Using Telehealth in Medicaid During COVID-19 from Manatt on Health: Medicaid Edition

NEW Videos on Wearing a Cloth Face Mask, Washing your Hands and Staying Home When you are Sick in SPANISH and ENGLISH from the National Association of School Nurses

What can families do if they disagree with their IEP Team? What are the options? Tim Markle, Director of the Southern Regional Center for CYSHCN talked with guests from Gia Pionek from the Wisconsin Special Education Mediation System and Matthew Zellmer from WI FACETS about what parents and schools can do when they disagree. Recording is AVAILABLE.

We all need a Self-Care Calendar! Check this out from Action for Happiness

Shout out to Highland Community Schools in Iowa County from NBC15

Amendment to Order #9 Released-Tuesday, September 1, 2020
The amendment allows for in-person instruction to students with a disability and/or individualized education program.

Free Transition Training for Families of Youth with IEP’s: Transition Parents in Partnership trainings will take place virtually via Zoom beginning this fall. Now is a great time to take advantage of top-notch training without the stress of traveling or being away from home! Transition Parents in Partnership (TPIP) will prepare families for the transition process for their youth with disabilities ages 14-21 in the areas of employment, education, living and health. See click HERE to view the flyer for training options and registration.

What can we do to help“back-to-school” anxiety? a Conversation on Showing Up for Kids! August 27th 12:00-12:45pm Tim Markle, Director of the Southern Regional Center for CYSHCN talked with Connie Persike, Speech Language Pathologist and Behavioral Consultant from CP Consulting and Tim Peerenboom, School Psychology Consultant for WI DPI. They discussed ideas on helping our kids (and ourselves) deal with the anxiety of returning to school. Recording  NOW AVAILABLE

Returning to School During and After Crisis Practice Guides from Center on Positive Behavioral Interventions and Supports (PBIS)

August 2020 OSEP Update Responding to COVID-19: Back to School, Policy Letters from Office of Special Education Programs (OSEP) (8.27.20)

REVISED August 2020: A Transition Guide to Postsecondary Education and Employment for Students and Youth with Disabilities from the Office of Special Education and Rehabilitative Services (OSERS)

Parents: Supporting Learning During the COVID-19 Pandemic Online Modules from Vanderbilt University

Posted the Week of August 24, 2020

Anxiety in Schools Podcast Series from Rogers Behavioral Health

Supporting students with school anxiety during COVID-19 Blog Post by Rogers Behavioral Health

Rethinking Unemployment and Sex Education Autism Knows No Boundaries podcast with Michael John Carley

For Black Kids, Autism Caught Late in the Game from US News and World Report (via Michael John Carley)

Questions and Answers on Helping Kids Return to School. A recorded Facebook Live Event from Rogers Behavioral Health.

September Family Engagement Newsletter from WI FACETS featuring information on Assistive Technology and Virtual Learning along with ABLE accounts and trusts

Coronavirus Video Series has short 2-7 minute video on how public health benefits are impacted by COVID-19 from HealthWatch Wisconsin

COVID-19 Help (including a Resource Guide for Families) from Wisconsin Well Badger Resource Center

Strategies for Protecting K-12 School Staff from COVID-19 (updated 8.20.20) From the CDC 

Back to School Planning: Checklists to Guide Parents, Guardians, and Caregivers Includes: Preparing for At-Home Learning and and Preparing for In-Person Classes from the CDC

Posted the Week of August 17, 2020

Parents reflect on back to school plans, health experts offer tips from NBC15

Parents and Professionals in Wisconsin talk about Virtual Schooling and Home Schooling (recording) with the Autism Society of South Central Wisconsin

AUGUST 2020:THE  ANNUAL HEALTHCARE ISSUE from Exceptional Parenting

What The Coronavirus Means For IEPs This Year from DisabilityScoop

Special education students are not just falling behind in the pandemic — they’re losing key skills, parents say. From the Washington Post

Richard Engel: Kids with special needs are not OK right now. Neither are parents. From Today

Supports for Students with Neurodiverse, and Social and Emotional Needs During Covid-19 Resource list (8/20/20) from WI DPI

DiSH Special Session on COVID-19 and Schools  recording along with a Q and A document (8/20/20)

How to Thrive — Not Just Survive — in the Age of the Coronavirus: Focus On 5 Core Principles from Thrive Global

Q&A: Mental health expert talks emotional well-being, building resiliency for the 2020-21 school year from Community Impact Newsletter

As schools reopen, addressing COVID-19-related trauma and mental health issues will take more than mental health services from Child Trends

Guidelines for the Prevention, Investigation, and Control of COVID-19 Outbreaks in K-12 Schools in Wisconsin (8/19/20) from WI Department of Health Services

COVID-19 Decision Tool for Individuals and Families (8/19/20) from WI Department of Health Services

Education Forward: Operating Schools During a Pandemic (8/19/20) from Wisconsin Department of Public Instruction

Down Syndrome Clinic to You (DSC2U) brings the best of health and wellness information about Down syndrome to caregivers and primary care physicians around the globe

South Madison Community COVID Testing Site at the Park Street Public Health WIC clinic is open Mondays, Wednesdays and Fridays. You need to make an appointment.

Equity and Diversity

Summer 2020 Resources

Resources for Families to Support Learning from Home During COVID-19 on our School Page

COVID-19

30th Anniversary of the ADA

Resources for Families with Younger Children

Nuggets from the News

Mental Health Resources

Resources for Teens/Preparing for Transition to Adulthood

Children and Youth with Special Health Care Needs/Maternal and Child Health

Southern Regional Center for CYSHCN Conversations on Showing Up for Kids!

  • Camp Cancelled? Ideas for Summer 2020 PART TWO!(Live June 17, 2020) Recording available on YouTube
  • Camp Cancelled? Ideas for Summer 2020 (Live June 10, 2020) Recording available on YouTube
  • Special Education and IEPs (Live June 3, 2020) Recording available on YouTube
  • Rural Wisconsin: The Good, the Bad and the Ugly (Live May 27, 2020). Recording available on YouTube
  • Anxiety: Ideas to help our kids be calm(er) and (more) focused (Live May 20, 2020). Recording available on YouTube
  • What we can learn from a virtual school (Live May 13, 2020). Recording available on YouTube
  • Learning from home and Neurodiversity (Live May 6. 2020). Recording available on YouTube

 

A Spanish language edition, “GUÍA DE RECURSOS,” can be found here.

Here is a place of connections and relationships. We truly believe we are better together. We hope this web site will serve as a portal to introduce you to a number of exciting opportunities available in Wisconsin. Here you can connect to a large number of resources concerning autism spectrum disorder and other developmental disabilities. Here you will find training on screening, assessment, diagnosing, communicating results, starting a medical home and more, much more. Here you can join with over 150 other people representing over 50 organizations at a state-wide Community of Practice.

Together we can make a difference. We invite you to look through this portal and see what we are working on and we invite you to join us. If you have any questions or suggestions, please contact Tim Markle at markle@waisman.wisc.edu