Next CoP ASD/DD will be October 13 in the morning and will be virtual. Save the Date!

Tele? What have we learned from pivoting to tele-services for those with Autism Spectrum Disorder and other Developmental Disabilities?

Recordings available on our Past Meetings page.

Check out past CoP ASD/DD recordings, Conversations on Showing Up for Kids!, Transition Talks Tuesdays, 5 County Transition Talks and more videos at https://www.youtube.com/channel/UCQ5zpWuJxlbjZLw595ST9ig

Southern Regional Center for Children and youth with Special Health Care Needs provides the following content:

School Information, Guidance and Resources–now on our School/Special Education Page

COVID-19 (AND MORE) Resources for children with special health needs and the families who care for them

Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown

Waisman Center Resources and Updates on COVID-19

WI DHS Higher Risk/Families with CYSHCN Resources for COVID-19

Spotlight Monday, August 1

The Wisconsin Department of Health Services wants your input on remote services. Your input will help us continue to develop permanent policy for remote services for the Children’s Long-Term Support (CLTS) Program and Children’s Community Options Program (CCOP). Take the survey by August 13th.

Endless Possibilities 2021: Successful Transitions | Virtual Conference  Friday, August 6  8:00am-3:00pm CST. Register before Noon on 9/4!  Registration.

Harnessing Abilities Transition Summit 2021 (with Temple Grandin) August 10 Prairie du Chien 8:00am-4:00pm Register before 9/8! Registration.

Upcoming webinars/trainings/conversations

LIFT Leopold Community Summer Series Aug 3, 10, 17, 24  4-7pm Aldo Leopold Park (2906 Traceway Drive, Madison)

LEVANTA Leopold Serie de Verona 3, 10, 17, 24 de Agosto  Martes 4-7PM Parque Aldo Leopolk (2906 Traceway Drive, Madison)

Sina Davis Movies in the Park (Madison) Aug 3  Scoob 6:00pm Meadowood Park Storytime begins at 5:30 with Forward Madison FC players

Now is the Time 2021 — Evidence-Based Practice in Youth Treatment Virtual Event  August 4 and 5  9:00am-4:30pm

Grant County: Resource Fair and Backpack Pick-up! Thursday, August 5  4:00-6:30pm Grant County Fair Grounds To reserve a backpack, call Grant County Social Services at 608-723-2136. Sponsored by Grant County CST and Grant County Services. Stop by and see us at the Southern Regional Center table. Email us at cyschcn@waisman.wisc.edu and we will email you the flyer with details.

Sina Davis Movies in the Park (Madison) Aug 5  Captain Marvel  6:00pm Owl Creek Park

Endless Possibilities 2021: Successful Transitions | Virtual Conference  Friday, August 6  8:00am-3:00pm CST. Registration.

Sina Davis Movies in the Park (Madison) Aug 6  Tenet 6:30pm Lake Edge Park

Gatherings for Families of kids of all ages who are d/hh/deafplus/deafblind  August 7 2:30-4:30pm Brockmeyer Park, Wausau. RSVP by July 30th.

Harnessing Abilities Transition Summit 2021 (with Temple Grandin) August 10 Prairie du Chien 8:00am-4:00pm Registration.

Special Needs Saturday – Back to School! Start the year off right with a workshop on how to get started with special needs planning. August 14 10:00am via Zoom

The Intersection of Race and Mental Health: Trauma in Education and Treatment August 17th 9:30am-11:30am from WISE Coalition

Medical Mask Exemption Hours for Madison’s Children’s Museum Wednesday, August 18 @ 3:00 pm – 5:00 pm You need tickets as capacity will be limited.

The museum will be open for playtime for visitors who are not able to visit during regular hours, when masks are required for all.

Madison Metropolitan School District In-Person Resource Fair August 24  4:30-6:30pm Lussier Family Heritage Center 3101 Lake Farm Road, Madison

2021 Wisconsin Infant and Early Childhood Mental Health Virtual Conference October 11-12, 2021

Children Come First Conference, November 15-16, Kalahari Resort

Week of August 1

Katie Beckett Medicaid Helps Children with Disabilities Access Needed Services

Katie Beckett Medicaid provides access to Wisconsin Medicaid services for children with disabilities, mental illness, or complex medical needs. Katie Beckett helps some children whose parents have too high of an income for Medicaid, and those covered by private insurance, get a ForwardHealth Medicaid card so they can receive needed services and equipment that might not otherwise be covered.

To apply, families can call 888-786-3246. They will be connected with an eligibility specialist who will explain the Medicaid benefit and help the family decide if they want to pursue enrollment.

Learn more on the Wisconsin Department of Health Services website.

Respite Care Association of Wisconsin August Connections

The Wisconsin Department of Health Services wants your input on remote services. Your input will help us continue to develop permanent policy for remote services for the Children’s Long-Term Support (CLTS) Program and Children’s Community Options Program (CCOP). Take the survey by August 13th.

Advancing FASD Research, Services and Prevention Act (FASD Respect Act)
A bill that will bring Fetal Alcohol Spectrum Disorder (FASD) into the forefront of our health, education, social welfare, and justice systems.

You can help in the following ways.

  1. Learn about this bill (Senate Bill S.2238 and House Bill H.R.4151). You can read more about the bill on the NOFAS website HERE.
  2. Contact jwille@orchidsfasdservices.org if you would like to receive a recording of this meeting going over the bill and discuss what impact it could have for us in Wisconsin.
  3. Join the 90 Days/ 90 Ways email campaign HERE and receive ideas each day for actions you can take to support this bill.
  4. Ask any organization you are a part of, including your church, your workplace, your professional organization, your doctor…to sign the letter of support for this bill HERE.

Week of July 27

Genetic Testing ‘Strongly Recommended’ For Kids With Intellectual Disability from Disability Scoop

Disability Service Providers Face ‘Unprecedented’ Labor Shortage from the Sacramento Bee

Autistic Mental Health & Well-Being Virtual Training from Autism Society of Greater Wisconsin

August 2021 Family Engagement Newsletter from WI FACETS

  • Family Engagement Article: Understanding Tourette Syndrome
  • Research to Read: Social stigma and self-perception in adolescents with Tourette Syndrome
  • Online resources for youth and families in the area of Other Health Impairment
  • For Your Information: Resources to Support English Language Learners From the U.S. Department of Education
  • Information about upcoming statewide trainings, workshops and conferences
  • At Home Learning Strategies

PLUS–check out his short Conversation with Ellis Jarvie from the Wisconsin Chapter of the Tourette Association of America.

Innovative UW Undiagnosed Genetic Disease Clinic Seeks to Identify Rare Genetic Conditions from UW-Madison School of Medicine and Public Health

Child Emotion Lab at the UW-Madison Waisman Center is recruiting children 3-14.

Going Alone: How COVID-19 and Racism Are Exposing Gaps in AAPI Mental Health Care from Psychiatric Times

National Minority Mental Health Awareness Month is July — access resources from National Institute for Children’s Health Quality (NICHQ)

On ADA Anniversary, Biden Recommits To Disability Rights from Disability Scoop

Next Level Disability Inclusion Ministry from Key Ministry

Disability Information and Access Line Help with COVID-19 vaccinations for people with disabilities from Administration for Community Living

Week of July 19

Commemorating BIPOC Mental Health Month from Rogers Behavioral Health

Self-care and compassion tips for parents of children with ASD from Rogers Behavioral Health

Dane County Behavioral Health Resource Center — If you, someone you care about, or someone you are working with needs help finding mental health and/or substance use services in Dane County, please share our website and contact the BHRC. The BHRC phone line is available Monday to Friday 7am to 7pm at (608) 267-2244; Email the BHRC at BHRC@countyofdane.com

Understanding Parkinson’s Disease August 4 1:00-2:00pm Webinar Wednesday from Respite Care Association of Wisconsin

Dealing with my Harshest Critic from Key Ministry

Thoughts from a Sibling from Key Ministry

The Importance of Expectations for Your Child with Special Needs from Key Ministry

My Seizure Action Plan from Epilepsy Foundation includes forms in multiple languages

Join Living By Design and the American Heart Association for Part 4 of our Health Series. This week, we have a world-renowned Psychologist and neuroscientist, Dr. Richard Davidson, Dr. Davidson goes deep into our subconscious and emotions to help us understand and heal ourselves!

An alternative to “discipline and order”, teaching children psychological resilience from Mental Health Today

Research Studies

The Little Listeners Project at the Waisman Center is recruiting typically developing children between 18 and 24 months and children with diagnosed or suspected ASD between 24 and 35 months to look at how children learn language. For more information, email the staff at littlelisteners@waisman.wisc.edu, call 608-263-3123 or complete the online sign up form at https://littlelisteners.waisman.wisc.edu.

The Motor and Brain Development Lab at the Waisman Center is recruiting autistic children for a research study that looks at brain regions controlling sensory and motor behavior in children with autism and children with typical development. Dr. Brittany Travers and her study team are currently recruiting children 6-10 years old with a diagnosis of autism spectrum disorder. If you are interested in enrolling your child to participate in this research study, the next step is to answer some questions to see if your child is eligible to participate. Contact our study team at (608) 263-8913 or BrainyMovtStudy@waisman.wisc.edu for more information.

Learning in two Languages – Virtual Study; Bilingual 4-5 year old children who speak English and Spanish and are either typically developing or with language impairment. Language Acquisition and Bilingualism (LAB) Laboratory

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The Southern Regional Center for Children and Youth with Special Health Care Needs tries to help families, and the professionals who support them, through providing current resources, news articles, interesting items and more. We post “What’s New” on our home page each week. We regularly post this content and more on our Facebook page. We send out a weekly Resource Round-up on Fridays (send an email with Weekly Resource Round-up in the Subject Line to cyshcn@waisman.wisc.edu to join).We bring together the “What’s New” resources by topic and place them on the Resources page. We hope you can find some help, encouragement, or just information on this page. New content is added regularly.

A Spanish language edition, “GUÍA DE RECURSOS,” is here!

Here is a place of connections and relationships. We truly believe we are better together. We hope this web site will serve as a portal to introduce you to a number of exciting opportunities available in Wisconsin. Here you can connect to a large number of resources concerning autism spectrum disorder and other developmental disabilities. Here you will find training on screening, assessment, diagnosing, communicating results, starting a medical home and more, much more. Here you can join with over 150 other people representing over 50 organizations at a state-wide Community of Practice.

Together we can make a difference. We invite you to look through this portal and see what we are working on and we invite you to join us. If you have any questions or suggestions, please contact Tim Markle at markle@waisman.wisc.edu