October 13th is the CoP ASD/DD Virtual Gathering
Hope: High Expectations Across the Lifespan
This day is a partnership with CESA #1, Milwaukee Urban Autism Summit and Autism Society of Southeastern Wisconsin
Thank you to our wonderful presenters and all who attended.
Keynote from the CoP ASD/DD on 10/13/21.
Panel of Experts from the CoP ASD/DD on 10/13/21.
Resource Sheet from the CoP ASD/DD on 10/13/21.
We welcome Lola Dada-Olley speaking on Hope: High Expectations Across the Lifespan
Lola Dada-Olley is an attorney, disability inclusion advocate, mom, wife, and podcast host. Lola is the older sister to an autistic man and the mom to both a son and a daughter on the autism spectrum. She chronicled her family’s multi-generational autism journey with the launch of the “Not Your Mama’s Autism” podcast in 2020. Part audio memoir/part interview-style podcast, Lola touches on topics such as societal stigma, culture, the intersection of race and disability, healthcare, community policing, and corporate disability inclusion efforts. She is also on the board of directors of two nonprofit organizations centered on increasing access to healthcare, community support, and/or vocational opportunities for people with disabilities. In June 2021, Lola started writing a monthly column for PsychCentral.com, a division of Healthline Media, titled “The Caregiver Chronicles”, that takes a deeper dive into her personal account of lifetime caregiving. Lola also gave the TEDx talk in 2021, titled “Your Path is Your Purpose,” where she explains how a series of seemingly disjointed life events led her to where she is today.
We also welcome a dynamic family panel of Rechelle Chaffee, Daysi Jimenez and Ida Winters discussing their experiences with Hope and High Expectations
You can view past CoP ASD/DD recordings, Conversations on Showing Up for Kids!, Transition Talks Tuesdays, 5 County Transition Talks and more videos at https://www.youtube.com/channel/UCQ5zpWuJxlbjZLw595ST9ig
Resources for children with special health needs and the families who care for them
Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown
WI Department of Health Services Clinical Guidance for vaccinating 5-11 year olds (11.5.21)
Safe, Strong & Healthy Schools with Wisconsin doctors, educators, scientists, and leaders exploring the ways that schools and districts can build and maintain “Safe, Strong & Healthy Schools”
ReSET (Restarting Safe Education & Testing) for Children with Medical Complexity from Healthy Kids Collaborative Dane County
Spotlight Friday, December 3
- Dec 7 — Moving, Sensing and Feeling
- Dec. 14 — Preparing for and Navigating Transition and Changes in Routine
- Dec. 21 — This is Supposed to be Fun! Navigating the Winter Holidays, Autism and your Extended Family
Registration is now open (when necessary)!
- Medicaid Made Easy Dec 15, 5:00-6:00pm (virtual) No Registration Needed! Join Zoom: http://us02web.zoom.us/j/88661880534?pwd=YThLS2JCdUk2SVN6VWFPczM0NWxCUT09 Meeting ID: 886 6188 0534 / Passcode: 622051 / Phone-In Option: 312-626-6799; Medicaid Made Easy will give you a solid understanding of Medicaid programs for children, including those with disabilities. It’s focused on how these programs work to cover what your child needs. Presented by Family Voices of Wisconsin in partnership with SRC, Sennett Middle School and Juneau County Head Start.
- Did You Know? Now You Know! Dec 15, 6:00-7:00pm (virtual) Registration Come learn about all the resources and services for children with disabilities and special health care needs from birth through young adulthood. Topics include private health insurance, Medicaid, long-term supports, how to coordinate services and so much more.
WSEMS: Friendly and Productive IEPs Dec 6, 12:00-1:00pm from WI FACETS
A Family-Centered Research Agenda for Improving Health Care Transitions for Children with Special Health Care Needs webinar Dec 7, 12:oopm from Lucille Packard Foundation for Children’s Health
This is WFT — who we are, what we do and the difference we make Dec 7, 12:00-1:00pm from WI Family Ties (WFT)
Disability Work Benefits: Navigating Work and Support Dec 7, 6:00-7:00pm Registration Part of Transition Talks Tuesday with the School District of Janesville (but you are invited!)
Mindfulness for Students with Disabilities Dec 8, 12:00-1:00pm from WI FACETS
Useful Resources in the IEP Process (Spanish) Dec 9, 12:00-1:00pm from WI FACETS
Wraparound–principals and making the most of the team Dec 9 12:00pm-1:00pm & 6:00pm-7:00pm from WI Family Ties
Retirement Allocation — a 2nd Bucket Strategy Dec 9, 7:00pm-8:00pm from Joel Dettwiler and Quantum Group
Access to print and mental health — what’s the connection and what to do about it Dec 13, 12:00pm-1:00pm & 6:00pm-7:00pm from WI Family Tie
IEP 10: Parent Rights in the IEP Process Dec 14, 12:00-12:30pm from WI FACETS
When do Families Need to Start Thinking Transition? Part Two Dec 15, 12:00-12:45pm. Registration Part of Conversations on Showing Up for Kids!
Part C of IDEA: The Early Intervention Program for Infants & Toddlers with Disabilities in WI webinar Dec. 15, 12:00-1:00pm
Medicaid Made Easy Dec 15, 5:00-6:00pm (virtual) No Registration Needed! Join Zoom: http://us02web.zoom.us/j/88661880534?pwd=YThLS2JCdUk2SVN6VWFPczM0NWxCUT09 Meeting ID: 886 6188 0534 / Passcode: 622051 / Phone-In Option: 312-626-6799; Medicaid Made Easy will give you a solid understanding of Medicaid programs for children, including those with disabilities. It’s focused on how these programs work to cover what your child needs. Presented by Family Voices of Wisconsin in partnership with SRC, Sennett Middle School and Juneau County Head Start.
Did You Know? Now You Know! Dec 15, 6:00-7:00pm (virtual) Registration Come learn about all the resources and services for children with disabilities and special health care needs from birth through young adulthood. Topics include private health insurance, Medicaid, long-term supports, how to coordinate services and so much more.
Supporting Neurodiverse Students Professional Learning System (SNS) — The goal of the SNS is to support a skills based approach to challenging behaviors that will improve a student’s social understanding and self-management. More virtual and online trainings in 2022!
Week of November 29
Today (12/3/21) Governor Evers signed the Guardian Training bill (SB 92/AB 100) into law
2021 Community Report on Autism — CDC estimates that about 1 in 44 8-year-old children have been identified with ASD (or 23.0 per 1,000 8-year-olds) — from the Autism and Developmental Disabilities Monitoring (ADDM) Network
Transition Programming Beyond Age 18 from Transition Improvement Grant (TIG) and WI DPI includes:
- Current state and federal special education guidance and regulations
- IEP team conversation starts to set the stage for beyond 18 discussions
- Review and reflection of IEP and PTP goals
- Partnership resource mapping guidance, examples, and resources
- Sample student schedules
- Templates for teams to lay out goals, plans, and map transition partners
- Additional resources to help teams build successful transition schedules
Family Voices United to End Racism Against CYSHCN and their Families (FamU) has launched a toolkit website designed to support the important work of dismantling racism in health care. The website offers concrete tools designed to support organizations and individuals to become more culturally competent and responsive by building meaningful, equitable engagement with Black children and youth with special health care needs (CYSHCN) and their families. It is designed to Build Competence, Foster Connectedness and Encourage Confidence to Act. You can find:
- Understanding Black Culture to learn about the first enslaved Africans who set foot on American soil in 1619 to present day;
- Tools to Get You Started includes Cultural Awareness and Cultural Growth Tools, documents to assist with implementing this work, as well as resources for allies;
- Youth Leadership provides an overview of youth activism through history, resources on how to become a Youth Leader, and how to engage youth in your programming; and,
- Explore More Resources includes a Town Hall How-to-Guide and more.
Families Living With Disabilities from Brava Magazine
Wisconsin Respite Care Connections (December) from Respite Care Wisconsin
- Caring for the Givers During the Holiday
- Mindfulness Mondays — 1st and 3rd Mondays 9:00-9:30am
- Bringing Respite to Your Community — FREE 6-week workshop begins in January and usually fills up fast!
- RCAW Grant Program Updates on Webinar Wednesday — Jan 5, 1:00-2:00pm
- Respite Care Provider Training with updates launching in December
- Volunteer Respite Manual: Creating Valuable Options for Family Caregivers from ARCH National Respite Network and Resource Center
Hidden Costs, Real Expenses: Costs of Caregiving video from WI BPDD
December Wisconsin Family Engagement Newsletter from WI FACETS
- Family Engagement Article: Family and School Partnerships for Students with IEPs
- Research to Read: Listening to Parents’ Narratives: The Value of Authentic Experiences with Children with Disabilities and Their Families
- Online resources for youth and families in the area of Communication
- For Your Information: Rule Change for Identifying Emotional Behavioral Disability (EBD) Goes into Effect December 1, 2021
- Information about upcoming statewide trainings, workshops and conferences
- At Home Learning Strategies
Family ECHO: Autism — Join a community of families learning to better support their autistic children Dec 8, 3:00-4:15 Strategies to Promote Well-Being and Ensure Quality Care
Crime Against People With Disabilities On The Rise from Disability Scoop
Week of November 22
How to Take the Stress Out of the Holidays from Child Mind Institute
How to Teach Children Gratitude from verywellmind.org
Improving Health Care Transitions for Children and Youth With Special Health Care Needs from Lucile Packard Foundation for Children’s Health
Healthcare Access and Utilization for Young Adults With Disability: U.S., 2014–2018 from Journal of Adolescent Health
Rising Above Depression | Stephanie’s Story from Rogers Behavioral Health
Two Jobs, No Breaks: Employed and Caregiving Video from WI Board for People with Developmental Disabilities
Adrienne Hibbert: Equity is the Answer; Let’s Talk About Bias in Healthcare, Parenting and Financial Access from Florida Family Leader Summit 2021
Chatter Matters! Communication Camp is an overnight camp for children who use augmentative or alternative communication (AAC) and up to five of their immediate family members. June 16-19, 2022 at the University of Wisconsin-Whitewater. Applications are now available. Applications will be accepted until January 24th. Scholarship opportunities.
- Research Study on Reducing Stress in Parents of Children with Disabilities with Brief Self-Compassion Practices by Email To participate you must be: 18+ Years old; A parent/ primary caregiver with a child 5 or younger who has a disability or special healthcare need.
- Research Study on Parent-Child Learning (ages 10-14) Study includes clinical assessment visit, MRI brain scans, and a final visit. From the UW BRAVE Research Center.
- Research study on Emotional Development (ages 10-16) Study includes a clinical interview, MRI brain scan, questionnaires and biological samples. from UW BRAVE Research Center
- Adolescents 14-18yrs old with chronic health conditions and one parent are invited to participate in a research study. More information.
- Child Emotion Lab at the UW-Madison Waisman Center is recruiting children 3-14.
- The Little Listeners Project at the Waisman Center is recruiting typically developing children between 18 and 24 months and children with diagnosed or suspected ASD between 24 and 35 months to look at how children learn language. For more information, email the staff at firstname.lastname@example.org, call 608-263-3123 or complete the online sign up form at https://littlelisteners.waisman.wisc.edu.
- The Motor and Brain Development Lab at the Waisman Center is recruiting autistic children for a research study that looks at brain regions controlling sensory and motor behavior in children with autism and children with typical development. Dr. Brittany Travers and her study team are currently recruiting children 6-10 years old with a diagnosis of autism spectrum disorder. If you are interested in enrolling your child to participate in this research study, the next step is to answer some questions to see if your child is eligible to participate. Contact our study team at (608) 263-8913 or BrainyMovtStudy@waisman.wisc.edu for more information.
- Learning in two Languages – Virtual Study; Bilingual 4-5 year old children who speak English and Spanish and are either typically developing or with language impairment. Virtual or in-person options. Language Acquisition and Bilingualism (LAB) Laboratory
The WI Children’s Mental & Behavioral Health Navigator is a free, confidential, online tool designed to help parents, caregivers and professionals in Wisconsin navigate (find, access, pay for) mental and behavioral health services and support for children, adolescents and young adults under the age of 21. Just answer a few questions about the child, and the Navigator provides a customized guide to connect kids and families with the resources and support they need and deserve. Developed by Well Badger Resource Center.
Revised Katie Beckett Fact Sheet from Family Voices of Wisconsin
Katie Beckett Medicaid Helps Children with Disabilities Access Needed Services
Katie Beckett Medicaid provides access to Wisconsin Medicaid services for children with disabilities, mental illness, or complex medical needs. Katie Beckett helps some children whose parents have too high of an income for Medicaid, and those covered by private insurance, get a ForwardHealth Medicaid card so they can receive needed services and equipment that might not otherwise be covered.
To apply, families can call 888-786-3246. They will be connected with an eligibility specialist who will explain the Medicaid benefit and help the family decide if they want to pursue enrollment.
Learn more on the Wisconsin Department of Health Services website.
Disability Information and Access Line Help with COVID-19 vaccinations for people with disabilities from Administration for Community Living
The Southern Regional Center for Children and Youth with Special Health Care Needs tries to help families, and the professionals who support them, through providing current resources, news articles, interesting items and more. We post “What’s New” on our home page each week. We regularly post this content and more on our Facebook page. We send out a weekly Resource Round-up on Fridays (send an email with Weekly Resource Round-up in the Subject Line to email@example.com to join).We bring together the “What’s New” resources by topic and place them on the Resources page. We hope you can find some help, encouragement, or just information on this page. New content is added regularly.
A Spanish language edition, “GUÍA DE RECURSOS,” is here!
Here is a place of connections and relationships. We truly believe we are better together. We hope this web site will serve as a portal to introduce you to a number of exciting opportunities available in Wisconsin. Here you can connect to a large number of resources concerning autism spectrum disorder and other developmental disabilities. Here you will find training on screening, assessment, diagnosing, communicating results, starting a medical home and more, much more. Here you can join with over 150 other people representing over 50 organizations at a state-wide Community of Practice.
Together we can make a difference. We invite you to look through this portal and see what we are working on and we invite you to join us. If you have any questions or suggestions, please contact Tim Markle at firstname.lastname@example.org
- Grant Information for the Connections Grant (2008-2011)
- Videos Vignette