CoP ASD/DD Virtual Gathering
October 13, 8:30am-12:00pm
Hope: High Expectations Across the Lifespan

Registration More

 October 13th is the CoP ASD/DD Virtual Gathering
Hope: High Expectations Across the Lifespan

This day is a partnership with CESA #1, Milwaukee Urban Autism Summit and Autism Society of Southeastern Wisconsin

Thank you to our wonderful presenters and all who attended. Check back soon for links to the video and the resource sheet.

Resource Sheet from the CoP ASD/DD on 10/13/21.

We welcome Lola Dada-Olley speaking on Hope: High Expectations Across the Lifespan

Lola Dada-Olley is an attorney, disability inclusion advocate, mom, wife, and podcast host. Lola is the older sister to an autistic man and the mom to both a son and a daughter on the autism spectrum. She chronicled her family’s multi-generational autism journey with the launch of the “Not Your Mama’s Autism” podcast in 2020. Part audio memoir/part interview-style podcast, Lola touches on topics such as societal stigma, culture, the intersection of race and disability, healthcare, community policing, and corporate disability inclusion efforts. She is also on the board of directors of two nonprofit organizations centered on increasing access to healthcare, community support, and/or vocational opportunities for people with disabilities. In June 2021, Lola started writing a monthly column for PsychCentral.com, a division of Healthline Media, titled “The Caregiver Chronicles”, that takes a deeper dive into her personal account of lifetime caregiving. Lola also gave the TEDx talk in 2021, titled “Your Path is Your Purpose,” where she explains how a series of seemingly disjointed life events led her to where she is today.

We also welcome a dynamic family panel of Rechelle Chaffee, Daysi Jimenez and Ida Winters discussing their experiences with Hope and High Expectations

Rechelle Chaffee
Daysi Jimenez
Ida Winters

You can view past CoP ASD/DD recordings, Conversations on Showing Up for Kids!, Transition Talks Tuesdays, 5 County Transition Talks and more videos at https://www.youtube.com/channel/UCQ5zpWuJxlbjZLw595ST9ig

School Information, Guidance and Resources for COVID-19–now on our School/Special Education Page

Resources for children with special health needs and the families who care for them

Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown

Safe, Strong & Healthy Schools with Wisconsin doctors, educators, scientists, and leaders exploring the ways that schools and districts can build and maintain “Safe, Strong & Healthy Schools”

ReSET (Restarting Safe Education & Testing) for Children with Medical Complexity from Healthy Kids Collaborative Dane County

COVID-19 Infection Control and Mitigation Measures for Wisconsin Schools 2021/2022 (8/5/21)

Guidelines for the Prevention, Investigation, and Control of COVID-19 Outbreaks in K-12 Schools in Wisconsin (8/5/21)

Waisman Center Resources and Updates for COVID-19

WI DHS Higher Risk/Families with CYSHCN Resources for COVID-19

Spotlight Tuesday, October 26

Higher Education Options: What Do I Need to Know? Oct. 26, 6:00-7:00pm Registration Part of Transition Talks Tuesday with the School District of Janesville (but you are invited!) Some of our students want to go to school after high school. but should they choose a 4-year college, 2-year college, technical college? How can they get the supports they need to succeed? Come learn about what are some of the options and some of the supports if a student wants to go to college. Deb Gilster from Blackhawk Technical College                    and Marissa Rehor from UW-Whitewater will be our presenters.

Safety and Autism–Having a Safety Plan  October 27, 12:00-12:45pm Conversations on Showing for Kids!  Registration Join Molly Naef, parent and professional, as she discusses what she learned through being a mom and through researching her doctoral project, “Home Safety Planning for Children on the Autism Spectrum.” We will be talking about the importance of having a safety plan.

Monthly Midweek Midday Movies (M4) in partnership with the Waisman Center. November 3, 12:00-1:30pm(ish)  Join us to watch Intelligent Lives and then stay for a discussion after the movie. More information and registration at https://www.waisman.wisc.edu/event/midweek-movies-intelligent-lives/

Did You Know? Now You Know! Nov 4, 12:00-1:00pm (virtual) Registration Come learn about all the resources and services for children with disabilities and special health care needs from birth through young adulthood. Topics include private health insurance, Medicaid, long-term supports, how to coordinate services and so much more.

INTEGRAL 2021: Supports, Skills and Society (Virtual) Nov 6, 9:00am Putting adults on the autism spectrum front and center, not as a subject for others to discuss, but to come together and exchange perspectives with non-autistic professionals and family members so that everyone can learn from each other. Hosted by the Autism Society South Central Wisconsin

Upcoming webinars/trainings/conversations/gatherings

Positive Parenting Workshop – Coping with Stress (Virtual) Oct 26 6:00pm-8:00pm presented by talkreadplay.com/parenting

Higher Education Options: What Do I Need to Know? Oct. 26, 6:00-7:00pm Registration Part of Transition Talks Tuesday with the School District of Janesville (but you are invited!)

Safety and Autism–Having a Safety Plan  October 27, 12:00-12:45pm Conversations on Showing for Kids!  Registration Join Molly Naef, parent and professional, as she discusses what she learned through being a mom and through researching her doctoral project, “Home Safety Planning for Children on the Autism Spectrum.” We will be talking about the importance of having a safety plan.

Epilepsy Recognition and First Aid Training Oct 27, 2:00pm via Zoom from Epilepsy Foundation of Wisconsin

Supporting Neurodiverse Students Professional Learning System (SNS) — The goal of the SNS is to support a skills based approach to challenging behaviors that will improve a student’s social understanding and self-management.

Upcoming Trainings:
Anxiety and Behavior Impedes Learning? Empower Students and Self Management Through Visuals  Oct 26, 8:30-3:30pm  Virtual
Processing Thinking – Resilience and Flexibility Oct 28, 8:30am-3:30pm Virtual

More virtual and online trainings in November!

Monthly Midweek Midday Movies (M4) in partnership with the Waisman Center. November 3, 12:00-1:30pm(ish)  Join us to watch Intelligent Lives and then stay for a discussion after the movie. More information and registration at https://www.waisman.wisc.edu/event/midweek-movies-intelligent-lives/

Did You Know? Now You Know! Nov 4, 12:00-1:00pm (virtual) Registration Come learn about all the resources and services for children with disabilities and special health care needs from birth through young adulthood. Topics include private health insurance, Medicaid, long-term supports, how to coordinate services and so much more.

Pediatric Mental Health in Primary Care Conference  November 5, 8:00am-1:00pm (live streamed) hosted by the Wisconsin Child Psychiatry Consultation Program (CPCP) Providing education and support to those who treat children and adolescent

INTEGRAL 2021: Supports, Skills and Society (Virtual) Nov 6, 9:00am Putting adults on the autism spectrum front and center, not as a subject for others to discuss, but to come together and exchange perspectives with non-autistic professionals and family members so that everyone can learn from each other. Hosted by the Autism Society South Central Wisconsin

Getting Help as an Adult: Aging and Disability Resource Center (ADRC) Nov 9, 6:00-7:00pm Registration Part of Transition Talks Tuesday with the School District of Janesville (but you are invited!)

Looking Forward 2021: Options after High School Nov 9, 6:00pm-7:30pm Virtual Representatives from Dane County organizations that offer a variety of post-high school opportunities and support for individuals with disabilities.

Writing a Quality Transition IEP for Students with Autism (Part 1) November 10,  12:00-12:45pm Registration Tim Markle, Director of the Southern Regional Center for CYSHCN will be joined by Kate Szidon from the UW Waisman Center and the Center on Secondary Education for Students with Autism Spectrum Disorders (CSESA). We will be talking about the recommendations CSESA has to help families and IEP teams make a quality transition IEP for students with Autism Spectrum Disorder.

Harnessing Abilities: Rounding Up Resources — Special Needs Financial Planning  Nov 10, 6:30-7:30pm Registration If you’ve been searching for special needs financial planning advice, you’ve probably noticed that there are not many people that can answer your detailed questions. How will you care for yourself? How will you care for your child for the rest of their life? Do your plans now, help to guarantee the security of your family’s future? Join us for a discussion on Special Needs Financial planning to see what areas are similar to traditional planning, and what areas are quite different. Presented by Joel Dettwiler

Children Come First Conference, November 15-16, Kalahari Resort

Writing a Quality Transition IEP for Students with Autism (Part 2) November 17, 2021  12:00-12:45pm Registration Tim Markle, Director of the Southern Regional Center for CYSHCN will be joined by Kate Szidon from the UW Waisman Center and the Center on Secondary Education for Students with Autism Spectrum Disorders (CSESA). We will be talking about the recommendations CSESA has to help families and IEP teams make a quality transition IEP for students with Autism Spectrum Disorder.

Reconnecting and Sharing in an Unknown New Normal — Save the Date November 16, 2:00-4:00pm Virtual — from Wisconsin Alliance for Infant Mental Health

Epilepsy and Wellness Nov 16 & 17 virtual via Zoom Fall Conference from Epilepsy Foundation of Wisconsin

Health Care Changes Too! Bridging the Gap Nov 23 6:00-7:00pm Registration Part of Transition Talks Tuesday with the School District of Janesville (but you are invited!)

Hunter and Tim Talk Transition November 24, 12:00-12:45  Registration  Special Thanksgiving Edition Join Tim and his young adult son Hunter as they talk about Hunter’s journey to adulthood.

Monthly Midweek Midday Movies (M4) in partnership with the Waisman Center. December 1, 12:00-1:30pm(ish)  Join us to watch Including Samuel and then stay for a discussion after the movie. More information and registration posted soon at https://www.waisman.wisc.edu/outreach/movies/

Disability Work Benefits: Navigating Work and Support Dec 7, 6:00-7:00pm Registration Part of Transition Talks Tuesday with the School District of Janesville (but you are invited!)

Thinking About Supportive Decision-Making Dec 14, 6:00-7:00pm Registration Part of Transition Talks Tuesday with the School District of Janesville (but you are invited!)

Did You Know? Now You Know! Dec 15, 6:00-7:00pm (virtual) Registration Come learn about all the resources and services for children with disabilities and special health care needs from birth through young adulthood. Topics include private health insurance, Medicaid, long-term supports, how to coordinate services and so much more.

Week of October 25

Tricks to make Halloween a treat for kids with special needs from Pittsburgh Post-Gazette (10/26/21)

Wednesday, October 20, COVID-19 Webinar for Local Public Health and School Stakeholders  presented by the Wisconsin Department of Health Services (DHS) and the Department of Public Instruction (DPI)

An American Indian/Alaska Native Perspective on Mental Health, Disability, and a Greater Understanding of Native Culture Webinar Oct. 28, 1:00pm-2:30pm from the Mental Health and Developmental Disabilities National Training Center

A Physician’s Reflections on Racism and Treating Sickle Cell Disease from NICHQ

Week of October 18

Strategies for ABLE Accounts: What, How & Who Podcast by Joel Dettwiler with Quantum Planners

Research Study on Reducing Stress in Parents of Children with Disabilities with Brief Self-Compassion Practices by Email To participate you must be: 18+ Years old; A parent/ primary caregiver with a child 5 or younger who has a disability or special healthcare need.

The Art of Storytelling (recorded webinar from AUCD) This webinar will demystify the notion that it is difficult for an individual to share their story in an impactful way, provide examples of how advocates can develop a storytelling project of their own, and provide techniques on how advocates can support individuals with disabilities on sharing their experiences.

Wisconsin Family Ties and the Children Come First Conference (CCF)  October 20, 12:00-12:45 Conversations on Showing for Kids! Recording and Resource Sheet

Research Studies:

Previous highlights

The WI Children’s Mental & Behavioral Health Navigator is a free, confidential, online tool designed to help parents, caregivers and professionals in Wisconsin navigate (find, access, pay for) mental and behavioral health services and support for children, adolescents and young adults under the age of 21. Just answer a few questions about the child, and the Navigator provides a customized guide to connect kids and families with the resources and support they need and deserve. Developed by Well Badger Resource Center.

Revised Katie Beckett Fact Sheet from Family Voices of Wisconsin

Katie Beckett Medicaid Helps Children with Disabilities Access Needed Services

Katie Beckett Medicaid provides access to Wisconsin Medicaid services for children with disabilities, mental illness, or complex medical needs. Katie Beckett helps some children whose parents have too high of an income for Medicaid, and those covered by private insurance, get a ForwardHealth Medicaid card so they can receive needed services and equipment that might not otherwise be covered.

To apply, families can call 888-786-3246. They will be connected with an eligibility specialist who will explain the Medicaid benefit and help the family decide if they want to pursue enrollment.

Learn more on the Wisconsin Department of Health Services website.

Disability Information and Access Line Help with COVID-19 vaccinations for people with disabilities from Administration for Community Living

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The Southern Regional Center for Children and Youth with Special Health Care Needs tries to help families, and the professionals who support them, through providing current resources, news articles, interesting items and more. We post “What’s New” on our home page each week. We regularly post this content and more on our Facebook page. We send out a weekly Resource Round-up on Fridays (send an email with Weekly Resource Round-up in the Subject Line to cyshcn@waisman.wisc.edu to join).We bring together the “What’s New” resources by topic and place them on the Resources page. We hope you can find some help, encouragement, or just information on this page. New content is added regularly.

A Spanish language edition, “GUÍA DE RECURSOS,” is here!

Here is a place of connections and relationships. We truly believe we are better together. We hope this web site will serve as a portal to introduce you to a number of exciting opportunities available in Wisconsin. Here you can connect to a large number of resources concerning autism spectrum disorder and other developmental disabilities. Here you will find training on screening, assessment, diagnosing, communicating results, starting a medical home and more, much more. Here you can join with over 150 other people representing over 50 organizations at a state-wide Community of Practice.

Together we can make a difference. We invite you to look through this portal and see what we are working on and we invite you to join us. If you have any questions or suggestions, please contact Tim Markle at markle@waisman.wisc.edu